Patient Education Liaisons (PELs) are professionals with backgrounds in nursing or genetic counseling who can provide answers and information to you and your family about hereditary ATTR (hATTR) amyloidosis and treatment with ONPATTRO® (patisiran), a prescription medicine that treats the polyneuropathy caused by hATTR amyloidosis in adults. PELs can provide disease and product education, connect you to additional resources, and answer questions about treatment.
PELs help raise awareness about hATTR amyloidosis in the community and educate patients and their families by:
- Engaging with patients one-on-one to provide education
- Participating in family meetings
- Reaching out to community health organizations and advocacy groups
My own experiences really play a large part in how I deliver education to patients and their families.
Joanna , Alnylam PEL